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Science 8 - Bioethics: Home

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Topic-specific Content

Genetically Modified Food and Labeling

Genetic Learning Science Center - based out of University of Utah

Are G.M.O. Foods safe? - NYTimes piece.

Various articles - from NYTimes section on Genetically Modified foods 

Hastings Center

Bangladesh Could be First to Cultivate Golden Rice, Genetically Altered to Fight Blindness

Golden Rice - From the organization's website.

Biofortification of Staple Crops - World Health Organization.

Biology Fortified - an independent educational tax-exempt non-profit organization whose mission is to enhance public discussion of biotechnology and other issues in food and agriculture through science-based resources and outreach. 

Scientists May Have Figured Out How to Use Genetically Modified Rice to Prevent HIV

What's the Debate over Labeling GM Foods? (Vox)

The GMO Labeling Debate (Discover Magazine)

Is GMO Labeling a He-Said, She-Said Debate? (Forbes)

The Genetically Modified Food Debate: Where Do We Begin? (Grist)

Genetically Engineered Foods (Medline: U.S. Library of Medicine)

These are the Seeds of a Revolution (NYTimes)

Viruses Spread by Insects to Crops Sound Scary. The Military Calls it Food Security (NYTimes)

The Difference Between GMO and GE Crops (OPB)

Genetically Modified Foods: Safety, Risks, and Public Concerns--A Review (Journal of Food Science Technology)

 

Funding of Research

What is Ethics in Research?

The Ethical Challenges of Socially Responsible Science 

Ethics of Funding of Research 

Ethical Issues in Funding and Monitoring University Research - Old article but detailed.

Europe's Biggest Research Fund Cracks Down on 'Ethics Dumping.'

How the Sugar Industry Shifted Blame to Fat - NYTimes article about the uncovering of information regarding decades of research.

Sugar Industry Long Downplayed Potential Harms - Further look into the recently uncovered information.

 

Animal Cloning

FDA

Hastings Center

Six Cloned Horses Help Rider Win Prestigious Polo Match

Cloning Fact Sheet - National Human Genome Research Institute.

China's CRISP Push in Animals Promises Better Meat, Novel Therapies, and Pig Organs for People

20 Americans Die Each Day Waiting for Organs. Can Pigs Save Them?

 

Genetic Editing to Prevent Disease

Genetics, Disease Prevention and Treatment FAQ - National Human Genome Research Institute.

Scientists Precisely Edit DNA in Human Embryos to Fix A Disease Gene - NPR

Genetic Modification: Disease Prevention or Future Disaster?

Genetically Modified Bacteria Enlisted in Fight Against Disease

Gene Therapy is Facing its Biggest Challenge Yet

 

Genetic Modification Against Aging

Aging is Reversible

Disrupting Genetic Processes Reverses Aging In Human Cells

Slowing Down -- Is Aging Caused by Decreased Cellular Metabolism?

Scientists Say the Clock of Aging May Be Reversible

A Harvard Professor Says He Can Cure Aging, But is That a Good Idea?

Can This Woman Cure Ageing With Gene Therapy?

 

Human Genome

Hastings Center

What is Direct-to-Consumer Genetic Testing?

 

DNA 

Crackdown on Genomic Surveillance

 

Genome Editing (CRISPR)

National Library of Medicine - Genetics Home Reference

Additional NLM article

Live Science

CRISPR-CAS9 Gene Editing Shows Very Low Risk of Mistakes

Is Gene Editing Ethical?

What Are the Ethical Issues Surrounding Gene Therapy? 

Perspectives on Gene Editing? 

AI and Gene-Editing Pioneers to Discuss Ethics

Human Gene Editing: Great Power, Great Responsibility

Is There a Responsible Way Forward for Gene Editing? 

Pro and Con: Should Gene Editing be Performed on Human Embryos?

 

Mosquito Control

Hastings Center

 

Genetic Testing & Notification

New Breast-Cancer Screening Guidelines Stoke Debate Over Patient Notification (Canadian newspaper but still applicable)

Cancer Screening Tests Guidelines (CDC)

An Advanced Notification Letter Increases Participation in Colorectal Cancer Screening (Study)

FDA Proposes Rule to Notify Women About Increased Cancer Risks

Genetic Testing Fact Sheet (National Cancer Institute)

Genetic Testing FAQ (National Human Genome Research Institute)

Employees Jump at Genetic Testing. Is That a Good Thing? (NYTimes)

Some Pitfalls of Genetic Testing (NYTimes)

The Promise of Genetic Testing in Medicine (NYTimes debate series: tackles equity, regulation and data sharing)

Genetic Tests Can Hurt Your Ability to Get Some Types of Insurance (NPR)

Genetic Testing Threatens the Insurance Industry (The Economist)

Can the Results of Direct-to-Consumer Genetic Testing Affect My Ability to Get Insurance? (U.S. National Library of Medicine - Genetics Home Reference)

Alzheimer's Disease Genetic Fact Sheet (National Institute on Aging)

Alzheimer's Genes, Are You at Risk? (Mayo Clinic)

Can Genetic Counselors Keep Up with 23andMe? (The Atlantic)

Time Out: Behind the FDA's Decision to Halt Direct-to-Consumer Genetic Testing

Genetic Testing: Should I Get Tested Alzheimer's Risk? (The Conversation)

Despite Fears of Alzheimer's, Many Would Like to Know Their Risk For the Disease (Washington Post)

Medical Advances Could Spare Soon Spare Patient Surgery (The Guardian)

What is Pharmacogenomics? (U.S. National Library of Medicine - Genetics Home Reference)

 

DNA Evidence

DNA Evidence in the Legal System (DNA Technology in Forensic Science)

The False Promise of DNA Testing (The Atlantic)

July Marks the 25th Anniversary of the First Use of DNA Evidence to Convict a Killer (Smithsonian Magazine)

Killer Breakthrough - the Day DNA Evidence First Nailed a Murderer (The Guardian)

How Forensic DNA Evidence Can Lead to Wrongful Convictions (JSTOR)

Jailed By Bad Science (New York Review of Books)

Convicted By Juries, Exonerated by Science (case studies about DNA evidence that led to exoneration, done by the Department of Justice)

 

Price of Medical Treatments

Making Life-Saving Treatments More Affordable (Harvard Business Review)

Is it Ethical to Consider the Cost of Treatment in Medical Decision Making? (SCU Markkula Center for Applied Ethics)

Why a Simple, Life-Saving Rabies Shot Can Cost $10,000 in America (Vox)

As Drug Prices Soar, People Delay or Skip Cancer Treatments (NPR)

The Ethics and Reality of Rationing in Medicine (Chest Journal)

The Real Reason Life-Saving Drugs are So Expensive: Op-ed (Live Science)

Cost of Treatment May Influence Doctors (NYTimes)

The High Cost of Cancer Drugs and What We Can Do About It (Mayo Clinic Proceedings)

Is There a Cure for the High Drug Prices? (Consumer Reports)

Doctors Press for Action to Lower 'Unsustainable' Prices for Cancer Drugs (NPR)

 

Human Genome Project

What Was the Human Genome Project and Why Has it Been Important? (U.S. National Library of Medicine - Genetics Home Reference)

The Human Genome Project (National Human Genome Research Institute)

DNA Sequencing Technologies Key to the Human Genome Project (Nature)

A Decade Later, Genetic Map Yields Few New Cures (NYTimes)

Explainer: What is the Human Genome Project (The Conversation)

A History of the Human Genome Project (Science)

Lessons From the Human Genome Project (Harvard)

Human Genome Project Marks 10th Anniversary (Live Science)

Can the Human Genome Project Be Save From Its Critics . . . And Itself?

The Failure of the Genome (The Guardian)

What is the Human Genome Worth? (Nature)

Indigenous Peoples Critical of the Human Genome Project

 

Monetary Aspects of Gene Editing

How Can I Make Money From My DNA? (The Guardian)

The Economics of Human Gene Patents (Harvard)

5 Reasons Gene Editing is Both Terrific and Terrifying (National Geographic)

Gene Drives Promise Great Gains and Great Promise (The Economist)

Why Gene-Therapy Drugs Are So Expensive (The Economist)

 

Privacy and DNA

To Protect Genetic Privacy, Encrypt your DNA (Wired)

Privacy in Genomics (National Human Genome Research Institute)

5 Biggest Risks in Sharing Your DNA With Consumer Genetic-Testing Companies (CNBC)

Understanding Ownership and Privacy of Genetic Data (Harvard)

Major DNA Company Shares Genetics Data With the FBI (Bloomberg News)

23andMe is Sharing Genetic Data with Drug Giant (Scientific American)

Your DNA Profile is Private? A Florida Judge Just Said Otherwise (NYTimes)

 

Cloning and Rights

General Assembly Adopts United Nations Declaration on Human Cloning (UN)

What is Cloning? (Learn.Genetics - University of Utah)

Human Clones and International Human Rights (SCU Law)

United Nations: Clones Have Rights, Too (Wired)

Human Cloning and Human Rights: A Commentary (Harvard)

 

Genetic Engineering vs. Selective Breeding

Genetic Engineering vs. Natural Breeding: What's the Difference? (Grist)

Genetic Engineering vs. Breeding (Biology Fortified)

Selective Breeding and Gene Technology (BBC)

How Does Genetic Engineering Differ from Conventional Breeding (Genetic Literacy Project)

Human-Induced Evolution Caused by Unnatural Selection Through Harvest of Wild Animals (National Academy of Sciences)

 

Genetic Modification of Babies

Genetic Modification and Genetic Determinism (Philosophy, Ethics, and Humanities in Medicine) 

Pro and Con: Should Gene Editing Be Performed on Human Embryos? (National Geographic)

Genetic Editing is Like Playing God--And What's Wrong With That? (The Guardian)

Genetically Modified Babies Given the Go Ahead by UK Ethics Body (The Guardian)

Engineering the Perfect Baby (MIT Review)

Designing Life: Should Babies Be Genetically Engineered? (Live Science)

What are the Ethical Concerns of Genome Editing? (National Human Genome Research Institute)

 

Epigenetics (Environment Affects Genes)

Gene-Environment Interaction (Harvard)

What is Epigenitics? (Psychology Today)

Epigenitics (National Institute of Environmental Health Sciences)

Epigenitics (Learn.Genetics - University of Utah)

Epigenitics: The Science of Change (Environmental Health Perspectives)

Epigenitics: DNA isn't Everything (ScienceDaily)

 

Reliable Websites

General Science Website

Popular Science (also has current events)

Smithsonian Magazine (science section

Scientific American (also has current events)

National Science Foundation (government websites) - Might be hard to navigate but access lots of information.

Understanding Science - UC Berkeley website 

Understanding Evolution - UC Berkeley website​

PubMed - Invaluable website that access to biomedical research. This is typically the original content, such as studies so the reading level is typically pretty advanced.

Retraction Watch - Lists scientific papers that have been retracted for various reasons (funding, bad data collection, misrepresented data, etc.)

Learn.Genetics - University of Utah

The Hastings Center

National Human Genome Research Institute

 

Science in the News and Current Events

Discover Magazine

NYTIMES Science Section (we have a subscription)

Science News for Students 

Science Friday - Science radio show.

Tips

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